Clinical Nurse - Rare Disease Care Coordination

About the role

Rare Care provides an outpatient cross-sector (multi-agency) care coordination service for children and their families with rare and undiagnosed disease (RUD). The Clinical Nurse works with the Clinical Nurse Specialist, manages referrals and uses PCH IT applications to collate patient information, coordinates the cross-sector clinic and liaises with the wider team, parents, the community and primary health providers. Outpatient clinics are held at community locations in Mt Lawley and Cockburn. The appointment is fixed term, full-time or part-time, up to 2.2 FTE until 30 June 2027, with possible extension and/or permanency.

Key responsibilities

• Manage referrals and use PCH IT applications to collect patient information that informs service delivery
• Coordinate the cross-sector clinic and provide care coordination
• Liaise with the wider cross-sector team, parents, the community and primary health providers

Required profile

• Demonstrated advanced level of skill in paediatric complex care nursing
• Well-developed communication skills, including negotiation and conflict resolution
• Demonstrated leadership skills within a multi-disciplinary team
• Experience working with people with rare or undiagnosed disease or significant medical complexity
• Experience coordinating care
• Valid Australian work rights; sponsorship is not available
• Eligible for criminal records screening and integrity checking, and possibly a working with children check and pre-employment health assessment

Applications are submitted online through the WA government jobs site, with a 2-3 page statement covering the selection and suitability criteria, a resume and two referees. Late or emailed applications are not accepted.